'Its Not The Endo The World...'

I haven't given an update recently on how I'm feeling now I'm no longer on the Prostap injections. Well Ladies, I was due my next injection last Tuesday and without it I'm pleased to report my Endo pain appears to be holding at bay. In fact I'm starting to sleep a little better and I'm starting to feel more like my old self again. What works for one person may not work for another. I was given the Prostap to help my pain, but for me it looks like it made it worse. I know we have to try these various medications and procedures. And yes it is trial and error, after all nothing is guaranteed to help. But no wonder this disease is such a rollercoaster ride! We get our hopes up when we hear that something may help ease the day to day struggle. And so when it doesn't work it makes it so much harder to stomach. Please don't let it it put you off though. We've all got to jump on that rollercoaster. Because one of those options may help us, even if it doe...

I've been struck down by the dreaded "common cold" since Friday evening. I have my Bestie to thank for bringing the germs in the house and turning me into a snotty grotty sneezing machine. Still, I don't let Endo beat me so I definitely won't let a silly cold. On the plus, my pain has been a bit more manageable. Had some bad moments today but on the whole it isn't as intense as the last couple of weeks. I would have been due my next Prostap injection today and I finished my HRT so it will be interesting to see how I feel over the next few weeks as the hormones start to rebalance. Got my scan date through for 15th March. Not too long to wait. Really want to know if they find more cysts. Kinda hoping they do as it would explain the increased pain. But lets see. March is almost upon us which means its the month to share the word about Endometriosis. What are you doing to get involved? A x

When I woke up this morning at 5.30am and knew I was still in pain, I was heartbroken. I didn't want to waste another day feeling sorry for myself under a blanket in pain. When I went downstairs and my Bestie asked how I was feeling and I responded saying the same, her response was "you don't look unwell". She followed on by saying I was always smiling and its only since I started this blog that others really appreciated what this disease was putting me through. I've always been pretty discreet about it all. I've never wanted to be seen to complain and I've never been particularly forthcoming with the details on my illness unless someone asks. For most people, the mention of anything that involves "womens stuff" is enough to put them off asking any more questions. I am feeling a bit better today, I can see light at the end of the tunnel (or this flare up at least). I'm still poorly, but not like the last few days thankfully. I've got ...

Thats what it feels like at the moment. Yesterday I mentioned that I was on the sofa feeling like I was being punished after completing the tasks that I planned for the day. Well it turns out I have ANOTHER water infection. I spent my Sunday afternoon at the Walk in Centre waiting for some antibiotics. I've had them enough to know the symptoms. I think I just like to stick my head in the sand sometimes. Doesn't everyone at some point?! Well I asked the Doctor what I can do to prevent these recurring infections. His response was "well if its the endometriosis causing them, theres nothing you can do." Well thats just great isn't it! This disease continues to throw more and more curveballs my way. I just wonder when they'll stop. So another 7 days of 4 tablets a day and another £8.40 spent on a prescription. Endo is getting more and more expensive for me it would seem. But needs must. My parents have bought me a TENs machine to see if it gives me some relie...

Hi All, Today I've been investigating how to keep track of my symptoms and diet so I can help determine if I have certain triggers that make the pain worse. I've got two apps that I'm testing on my iPhone at the moment. Pain Coach by WebMD and Nanolume. The second only allows 10 free entries before it costs which isn't ideal but its minimal for something that could potentially help. Has anyone got any apps that they would recommend for keeping track? Please get in touch. In other news, its been a week since my second Prostap injection. I think the nurse lied to me. Just saying. A x

My pain has been almost unbearable today. The backache, the pelvic pain, the hip pain and of course the headache which hasn't left my head for a week now. Whilst I was driving to work this morning, sitting in the daily traffic in Colchester, I was clouded by nothing but negative thoughts. The constant encouragement to get yourself to work, the wondering how many hours you will last before needing to go home, the overwhelming urge to just turn around and drive home so you can curl up in a ball and sleep. It was a long 25 minute drive today. I've naturally experienced tiredness before but since being on these Prostap injections, I've found out the true meaning of fatigue. Chronic fatigue. The feeling of just being in a room but not taking anything in around you, whether it be sounds or movements. The feeling of your heavy body, not wanting to move, even to take a sip of your drink. And the worst of all, knowing you look exactly the way that you feel. Like poo. I've...

So, its been 48 hours since I had my second Prostap injection. I've had a constant headache since but to be fair I was headachy before. Moods have been a bit edgy but I've been stressed over the last 48 hours too with other stuff. Tummy ache hasn't been ideal today but when is it these days?! I'm super tired but less so than in the first few hours of having the injection. I felt like I had been hit by a train. I'm still waiting for the miracle day when the second injection makes me feel wonderful but I'm still keeping my fingers crossed. Typically my doctors have said they won't be prescribing me anymore injections and so I have to go back to the hospital. Something about £75 an injection being too much. So right now I don't know when my next jab will be but hopefully they won't mess me around. Will keep you updated on my progress. A x

Well, todays the day. The day of my second Prostap injection. I'm nervous but excited too. Nervous that it might make my symptoms worse again. But excited that it might actually make me feel better. I've taken tomorrow off work just in case I don't feel well, but I'm hopeful that I can actually go out and enjoy my day instead. I need this to work. Because I'm not sure I can do another 4 weeks like the last. So please keep your fingers and toes crossed for me. I will update you all tomorrow. A x

Hope you're all enjoying your Saturdays. Unfortunately for me, bloated Friday has carried on into Saturday and the pain has been quite intense today. From my last MRI, it was noted that I had a 4cm cyst on my left ovary. It explains why the pain is much worse on the left hand side, plus I know the endo is more infiltrated on that side too. Feels like someones standing on my abdomen, putting pressure on it and causing uncomfortable pain. Still trying to stay positive about the injection on Tuesday. T minus 3 days. Afternoon cuddles with Pebbles (my gorgeous cat), painkillers and a hot water bottle have been in order. However, although I'm struggling today I did complete two of my three weekend objectives which I mentioned in my last tweet yesterday ( @hooky2 ), House valued, check! Car washed, check! So my Saturday hasn't been a complete write off. Lets see what tomorrow brings but I'm hoping it will be a better day pain wise... A x

Todays post is courtesy of my Best Friend who went to order my prescription for my Prostap injection in readiness for next Tuesday. Any of these medications which put the body into an early menopause require ordering into the pharmacy. I had it before with the Decapeptyl, and now with the Prostap. And they ALWAYS cause confusion with the pharmacists behind the counter (tip: set up a recurring order so its ready and waiting for you every month). So yesterday when Bex went into Boots she knew it wasn't going to be an easy task. The lady behind the counter obviously hadn't heard of the name before and so asked what it was for. Bex advised that it was to put the body into the menopause. The lady laughed. Now I'm assuming that was a laugh as she thought it was a joke or something. Otherwise I have no idea why someone would laugh at that!! Anyway, off she went and on her return she had another two members of staff. One of them obviously confirmed the u...

I'm lacking my inspiration and motivation today. I didn't sleep well last night and so I'm tired. But on this freezing cold Monday morning, I saw that my blog had gone even more Global. Thanks to Endometriosis Awareness on Facebook, my blog was seen by so many more of you Endo Warriors and their families. So firstly, hi! And thank you for taking the time to come and read my story. I thought I'd give an update on how I'm feeling since my injection. Its a week tomorrow until I get my next Prostap injection which means I'm 3 weeks into the cycle. The pain has eased since the first couple of weeks but I'm still struggling more than I was before the injection. Though according to the nurse that is to be expected. I'm a little anxious about the next one. On top of the horrendous pain, the first bought on a water infection which caused more pain and discomfort. But hopefully that won't happen again. My moods aren't too bad, although I am a little less...

One of the symptoms I have struggled to adjust to the most is the dizziness. That moment when you're in the middle of something and all of a sudden you feel light headed or faint. That moment where you panic that you are about to make a fool of yourself in front of your work colleagues, or the strangers in the shop. No doubt its something you have all experienced at some point in your journey. I started to research what I could do to help with the sudden dizziness that I was experiencing. I was willing to try anything to take away the anxiety that I felt when going out, worrying that at any point I would need to stop and take a seat. Well ladies, the answer is vitamins. After scaling the internet, I found several other Endo Warriors saying they had tried various vitamins, not only to help with dizziness but also the other symptoms endo/ade put upon us. I now take Bioglan Womens Multi-Vitamins on a daily basis. In fact I take two a day. One in the morning and one at night. Wha...

Messing around with hormones, its a dangerous game. Especially when you're putting a mid twenty year old into the menopause! In 2015, my Gynae said he wanted to try me on Decapeptyl injections to ease my pain. For those who know, these injections make your body think its in the menopause. At the time it was a daunting prospect. I was 25 after all. I'd heard the horror stories about the hot flushes and the night sweats. I didn't know how my body was going to react. Well, I think I lasted 2 injections. It was more to do with the fact my Uterine Embolisation procedure date came through which meant I had to come off the Decapeptyl, but thank god it did. I got the nickname "Hulk". I lost any level of patience. I snapped at the slightest thing. To put it bluntly, I was a horrible person. That said, the pain did ease! Its times like those, that I reflect and think what a strain this disease not only puts on me, but my family and friends too. My best friend got th...